Support the Fibromyalgia Network and its allies are hosting Virtual Fibromyalgia Hill Day on May 11.
LOS ANGELES, CALIFORNIA, UNITED STATES, April 29, 2022 /EINPresswire.com/ — The Support Fibromyalgia Network (Support Fibro) and friends are calling on congressional leaders to open up a sustained investment of fibromyalgia-specific research funding to that the disease can finally have an appropriate classification. In preparation for another virtual day of advocacy for fibromyalgia on May 11, more than 75 patients, caregivers and researchers living with this chronic condition will come together for a day of virtual meetings with their legislators.
Fibromyalgia is characterized by chronic widespread pain, accompanied by fatigue, trouble sleeping, memory, and symptoms of brain fog. The latest research has shown a link to neuroinflammation and studies continue to demonstrate an amplification of pain sensations that involves how the brain processes pain signals. Fibromyalgia affects up to 2-4% of people, women and men of all ages. Patients have a lower quality of life.
“Fibromyalgia is an unforgiving disease. It never stops, and it can wear down even the toughest of us. But together we are stronger and have the power to affect change,” said Melissa Talwar, Executive Director of Support Fibro. “The Advocacy Day allows us to come together to support each other and lobby our legislators.”
Support Fibro is a patient-centered non-profit organization whose mission is to educate and inspire people living with fibromyalgia. It was founded by a diverse group of individuals with one thing in common: they all suffer from the disease. The first annual Advocacy Day was held in Washington, DC in September 2019. Since moving to virtual meetings, the organization has expanded the base of fibromyalgia delegates across the country. Successfully collaborating with organizations such as Looms for Lupus, Veteran Voices for Fibromyalgia, and Men With Fibromyalgia, they bring together fibromyalgia advocates, clinicians, researchers, caregivers, and loved ones to connect and speak to their legislative representatives. Sustained investment in fibromyalgia-specific research is desperately needed to accelerate new treatments and determine the underlying cause of fibromyalgia, which is still unknown.
“Funding funds earmarked for specific neurological research in fibromyalgia will lay the groundwork for actionable development of better treatment options, help identify a specific medical specialty, and support improved quality of life,” Talwar emphasized. “We need all of our fibromyalgia warriors to come together to help us move these priorities forward for the greater good of the community.”
For those interested in participating in Fibromyalgia Advocacy Day, be sure to follow social media activities and check FibroDC.com for updates. For more information about Support Fibro, visit supportfibromyalgia.org.
For media inquiries, contact: Melissa Talwar, [email protected]
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